A lot going on

Since my last post a lot has happened. I had my 18 month check-up. All is well, still need to up my protein. My surgeon, Dr. Camacho, is suppose to be coming down for a visit in October. I have told Dr. Reyes he had better let me know when he is here because I would really like to see him and show off the new ME. He said he would. Paula Kilgore the baractric coordinator asked me if I would speak at the next support group meeting in Sept. because I had gone to the OH Event in Chicago. I said that I would, even though I normally don't go to the Tuesday group meeting.
George has been getting weaker and weaker. Finally Sunday night we took him to the hospital. They have diagnosed him with Dermatomyositis, what a mouth full to say. It is a muscle and skin disease. It is one of the Muscular Dystrophy myopathies. I am going to see if we can get assistance from MDA. He came home today after 5 days in the hospital. He is getting better. He is on prednisone and a few other drugs. He retained so much fluid in the hospital that his pants didn't fit him when we got him dressed to come home. I got him some knit pants that have a lot of stretch to them, that should work for a while.
Oh I forgot to say that Jen and Dan surprised us on Friday afternoon. They had said they were going to Vegas for the weekend, imagine my surprise when they knocked on the door at Denise's and walked in. I cried. It was so good to see them and have them here for moral support with her dad. The whole family was in on the surprise. They stayed a few extra days after putting George in the hospital. Hopefully things will get back to semi normal now that he is home. I will be taking him with me where ever I go. Now for a few pictures. We took some at my sister's Sunday night of our family and then there's one of me taken at church. Enjoy